You would think, with all the time on my hands these days, I would have more time to write. Somehow, despite social distancing and nowhere to go, my days fly by. Maybe that will change over time, but I have to be honest and say that March whooshed by for me. There’s so much to write about but, for now, I’ll just provide an update on my health journey, since so many have been checking in and asking. (thank you, as always)
Back on March 18th, I was supposed to have a follow up appointment with my plastic surgeon, who is in Bryn Mawr. It’s a 2-3 hour drive, depending on traffic, and it would have required at least two stops (one each way) at the rest area for a potty break. Since I was feeling pretty good, I thought it would be more prudent to cancel. I was intrigued when they said that they were working on a way to do virtual appointments and that they would be in touch. The thought of a virtual doctor’s appointment seemed very 21st century and a step towards the future. I had visions of Star Trek and was curious how it would work. I wondered if I would have to pass my phone over my scars so he could closely inspect them. Would there be a way to do vitals using the apps on my phone? And so many other questions.
They called me the day prior and instructed me to download Vidyo and said I would receive a link from them the morning. My appointment was at 10:30, and I had to give them a window of 10:30-11:30 for the appointment to start. New technology! I was ready!
Imagine my disappointment when my appointment ended up being nothing more than a phone call. I didn’t even get to try out the new software! My Star Trek experience was not to be. We spoke briefly about pain (I only still have sensitivity where my drains were), scar care (silicone gel and massage, check), and if I was happy with the results (I am). He then said that I no longer needed to see him, and that was that.
* * * *
In other news, today is Day 24 of taking my aromatase inhibitor, Aromasin (aka Exemestane). I’ve been doing much better on this than I did on the Femara way back when, and only just recently started experiencing a few side effects. Specifically, I am starting to deal with night sweats and a bit of insomnia. These go hand-in-hand since you can’t really sleep when you sweating then freezing because you kicked the covers off, and back and forth through the night. It hasn’t been to the magnitude of 2013’s experiences, and I’m hoping it doesn’t get any worse. When I do sleep, I am having crazy bizarre dreams, and then remembering 2-3 of them every morning. Normally I don’t recall any of my dreams. I guess this is neither good nor bad, just different.
I was scheduled for a Dexascan on March 25th to check my bone density, since the AIs can cause osteoporosis, but I canceled that appointment, as well. I didn’t bother to reschedule it yet since I didn’t want to reschedule multiple times. We’ll see how long this social distancing goes on. My oncologist called me last week to check in and said she’ll see me in May and that I can do the Dexascan in June. It’s really just a baseline so we know if the Aromasin is impacting me over time. It’s not like my bones will disintegrate in a few months time.
Otherwise, there is not much else to report on the health front. I’m feeling good and doing everything in my power to remain so (more on that in a future post).
Stay well, my friends! Live long and prosper!
IMDb: Star Trek (1979)